37 Websites:Organisations:Summaries:Related categories:Related keywords:Related locations:
spierfonds.nlPrinses Beatrix SpierfondsThe Prinses Beatrix Spierfonds is an organization dedicated to funding and promoting research and treatment for muscular diseases.Disease & Treatment → Medicine 1017 Disease & Treatment → Rare Diseases 229 gene therapy 10 donation 5110 research 8967 collaboration 16036
stophersentumoren.nlSTOPhersentumoren.nlThe STOPhersentumoren.nl Foundation is an organization that raises funds for research into brain tumors.Charities → Fundraising 1005 Cancer → Brain Tumors 11 brain tumor 17 peer support 68 donation 5110 foundation 6678 research 8967
fahrpatientenvereniging.nlFahr Patient Association NetherlandsThe Fahr Patient Association Netherlands is an organization dedicated to advocating for patients and their families affected by Fahr’s disease, and contributing to research and the association’s operations.Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 disease 285 patient 4082 donation 5110 newsletter 6504 community 7931 research 8967
vlinderkind.nlStichting VlinderkindThe website of Stichting Vlinderkind aims to raise funds for research into Epidermolysis Bullosa (EB) and to increase awareness of this rare skin condition.Cancer → Brain Tumors 11 Disease & Treatment → Rare Diseases 229 umcg 25 donation 5110 research 8967
stofwisselkracht.nlStichting StofwisselkrachtThe Stichting Stofwisselkracht is an organization that directs funds for research and activities related to metabolic diseases.Research → Medical Research 384 Disease & Treatment → Rare Diseases 229 patient 4082 partner 4272 donation 5110 research 8967 event 45199
debra.nlDEBRA NederlandDEBRA Nederland is a patient association dedicated to improving the quality of life and care for individuals with Epidermolysis Bullosa (EB).Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 peer support 68 anbi 120 donation 5110 association 8562 care 12338 The Hague → Scheveningen 1625
hetsikkelcelfonds.nlThe SikkelcelfondsThe Sikkelcelfonds is an organization that primarily funds scientific research into sickle cell disease with the ultimate goal of promoting a treatment and potentially a cure.Disease & Treatment → Diseases 829 Disease & Treatment → Rare Diseases 229 stem cell transplant 12 nijntje 16 donation 5110 research 8967
voorsara.nlStichting Voor SaraThe website ‘Fighting Rare Muscular Dystrophies | For Sara’ is focused on fundraising and support for patients with Lama2-MD and other rare muscle diseases.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 fighter 23 artwork 2248 donation 5110 foundation 6678 research 8967
lexbak.nlLex BakThe CureLex website is a crowdfunding campaign to raise money for the treatment of Lex Bak, a musician battling an aggressive form of cancer, Diffuse Midline Glioma (DMG) with the H3 K27M mutation.Social Issues & Welfare → Social Issues 18544 Disease & Treatment → Rare Diseases 229 money 582 cancer 631 donation 5110 family 6462 treatment 21203 event 45199
histio.nlHistiocytose NederlandHistiocytose Nederland is a patient organization providing information and peer support for individuals affected by histiocytic diseases such as LCH, HLH, and FHL.Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 facebook 850 brochure 1642 donation 5110
pxe.nlPXE NederlandThe PXE Nederland website is an initiative focused on funding research into the rare disease PXE.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 supermarket 406 fund 1063 patient 4082 donation 5110 research 8967
twanfoundation.nlTwan FoundationThe Twan Foundation is a foundation established by the parents of Twan, a boy with Ataxia Telangiectasia, providing information and support to families with this rare condition and offering donation and newsletter subscription options.Social Services → Welfare 1001 Disease & Treatment → Rare Diseases 229 diagnosis 1490 donation 5110 family 6462 newsletter 6504 foundation 6678 Utrecht → Veenendaal 2641
helpannemarieweerleven.nlStichting Help Annemarie weer levenThe website ‘Help Annemarie Live Again’ is a crowdfunding campaign aiming to raise funds for a life-saving operation in Barcelona for Annemarie, a young woman suffering from a rare condition affecting her neck and spine.Fundraising → Crowdfunding 22 Disease & Treatment → Rare Diseases 229 spine 125 operation 480 donation 5110
stichtingziektevanpompe.nlStichting Ziekte van PompeThe Stichting Ziekte van Pompe is an organization dedicated to research, support, and awareness regarding Pompe disease.Diseases → Neurological Diseases 21 Disease & Treatment → Rare Diseases 229 board 3438 patient 4082 donation 5110 foundation 6678 research 8967
stichtingrrp.nlStichting RRPThe website of Stichting RRP provides information to patients, their families, and professionals about the rare voice cord disorder Recurrent Respiratory Papillomatosis (RRP).Child Welfare → International Child Aid 149 Disease & Treatment → Rare Diseases 229 donation 5110 story 8285 Utrecht → Amersfoort 8011
golfenvoortim.nlTim FoundationThe website of the Tim Foundation aims to raise funds to support research and projects focused on developing medications and treatments for energy metabolic diseases.Neurology → Multiple Sclerosis 64 Disease & Treatment → Rare Diseases 229 disease 285 medication 1164 donation 5110 research 8967 energy 9075 collaboration 16036
energy4finn.nlStichting Energy4FinnThe Energy4Finn website is a foundation dedicated to fundraising for research and development of a medication against energy metabolic disorders, aiming to stop the disease and improve the quality of life for affected children.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 medical 216 disease 285 donation 5110 research 8967 energy 9075 event 45199
fuckingcic.nlStichting F*CKING CICThe website of F*cking CIC is an initiative focused on fundraising for research into CIC DUX4, a rare form of cancer, and providing support to patients and their families.Diseases → Cancer 546 Disease & Treatment → Rare Diseases 229 cancer 631 podcast 3328 donation 5110 research 8967
xlh-vereniging.nlXLH Vereniging NederlandThe XLH Vereniging Nederland is a patient association dedicated to advocating for the interests of individuals with X-linked hypophosphatemia and their families.Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 patient 4082 donation 5110 research 8967 membership 10442 news 15293
dolls-house.nlStichting Poppenhuizen voor Mito OnderzoekThis website provides information about dollhouses and supports research into mitochondrial disorders in children.Shopping → Hobbies 5234 Disease & Treatment → Rare Diseases 229 dollhouse 86 architect 609 donation 5110 research 8967 news 15293
ahus.nlStichting aHUS NederlandThe website of aHUS Netherlands aims to increase awareness of aHUS and improve the reimbursement for its treatment.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 medical 216 patient 4082 donation 5110 foundation 6678 treatment 21203
debasstichting.nlThe Bas StichtingThe Bas Stichting is an organization that supports research into juvenile dermatomyositis.Science → Medical Sciences 97 Disease & Treatment → Rare Diseases 229 research team 10 policy plan 114 donation 5110 foundation 6678 research 8967
msvrijleven.nlStichting MS-Vrij LevenThe Stichting MS-Vrij Leven supports MS patients seeking stem cell transplants abroad by organizing and managing their crowdfunding campaigns.Charities → Fundraising 1005 Neurology → Multiple Sclerosis 64 stem cell transplant 12 anbi 120 crowdfunding 246 patient 4082 donation 5110
stichtingwalkingwithgiants.nlWalking With GiantsWalking With Giants is a foundation dedicated to supporting individuals and families affected by primordial dwarfism.Research → Medical Research 384 Disease & Treatment → Rare Diseases 229 donation 5110 foundation 6678
rickjonckheerefoundation.nlRick Jonckheere FoundationThe Rick Jonckheere Foundation is an organization dedicated to raising awareness and funding research for CVID, a rare autoimmune disease, established after the unexpected death of Rick Jonckheere, a drum student at the Rock Academy.Personal Stories → Illness Stories 13 Disease & Treatment → Rare Diseases 229 disease 285 donation 5110 research 8967 event 45199 Tilburg → Old South 72
psdresearch.nlPSD Research FoundationThe PSD Research Foundation aims to improve care for patients with sinus pilonidalis through scientific research, knowledge sharing, and fundraising.Science → Medical Science 24 Disease & Treatment → Rare Diseases 229 symposium 339 study 720 donation 5110 research 8967
stichtingheadstrong.nlStichting Headstrong!The website of Stichting Headstrong! aims to raise funds for life-saving surgeries for Joany, a 25-year-old woman with a rare spinal condition, and to increase awareness of this condition.Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 updates 200 surgery 365 awareness 1735 donation 5110
1op5.nlStichting 1 op 5The Stichting 1 op 5 organization works to improve care for patients with rare cancers.Specialty Medicine → Cancer Care 97 Disease & Treatment → Rare Diseases 229 cancer 631 patient 4082 donation 5110 research 8967 care 12338
stichtingeckroosen.nlStichting Eck RoosenThe website of Stichting Eck Roosen aims to raise funds for fundamental research into the treatment of pancreatic cancer.Charities → Fundraising 1005 Diseases → Cancer 546 cancer 631 donation 5110 foundation 6678 research 8967 event 45199
stopdekatwijkseziekte.nlDutch CAA Foundation and Vereniging HCHWA-DThis website provides information and facilitates participation in research related to the Katwijkse Ziekte.Research → Medical Research 384 Disease & Treatment → Rare Diseases 229 lumc 17 disease 285 participation 1430 donation 5110 association 8562 research 8967
kat6a.nlStichting KAT6A Syndroom NederlandThe website of Stichting KAT6A Syndroom Nederland is an information platform and support resource for awareness and support surrounding the rare KAT6A syndrome, a genetic disorder diagnosed in approximately 25 individuals in the Netherlands.Wellbeing → Child Well-Being 28 Disease & Treatment → Rare Diseases 229 donation 5110 research 8967
1000kaarsjes.nlStichting 1000 kaarsjes voor JuultjeThe Stichting 1000 kaarsjes voor Juultje is a fund dedicated to scientific research into the rare disease LCH.Animal Welfare → Animal Protection 173 Disease & Treatment → Rare Diseases 229 donation 5110 foundation 6678 research 8967
kirstenskopgroep.nlKirstens KopgroepThe website of Kirstens Kopgroep is an initiative to financially support Kirsten ten Thije and others with a brain tumor and offer them a future perspective.Charities → Fundraising 1005 Cancer → Brain Tumors 11 fund 1063 donation 5110 research 8967 news 15293 event 45199
stichtingbenthe.nlStichting BentheThe Stichting Benthe is an organization dedicated to providing the best possible care and support for Benthe, a young girl with lymphatic malformation, including access to treatments and raising awareness of the condition.Animal Welfare → Animal Protection 173 Disease & Treatment → Rare Diseases 229 donation 5110 blog 13392
oog-genootschap.nlOog Onderzoek GenootschapThe Oog Onderzoek Genootschap aims to co-finance scientific eye research and inform patients with eye diseases and their relatives about the progress of these (inter)national eye research projects.Medical Care & Services → Ophthalmology 92 Disease & Treatment → Rare Diseases 229 gene therapy 10 disease 285 study 720 donation 5110 research 8967 Amsterdam → Southeast 815
shirley4cf.nlShirley4CFShirley4CF is an organization dedicated to fighting Fabry disease and raising funds for research.Social Services → Welfare 1001 Disease & Treatment → Rare Diseases 229 account number 19 facebook 850 donation 5110 research 8967
jobkwffonds.nlJob KWF FondsThe website aims to raise awareness and funds for research into Ewing Sarcoma, a rare form of bone cancer, and to establish a research fund.Diseases → Cancer 546 Disease & Treatment → Rare Diseases 229 crowdfunding 246 cancer 631 fund 1063 donation 5110 research 8967